Hey everyone! Allison Here!
This week has been very busy for me! I am working on my gold award project which is the highest award a girl scout can earn and it is comparable to the boy scout eagle award. I am also packing and getting ready to go to Cape Cod with some of my best friends. I met David and Michelle thru my NF in a way. At age 8 I was diagnosed with Moya Moya , something I will talk about more later. my mom met Michelle through a support group website for parents. a year after our surgery's we met! Michelle , David ,myself and my mom have gone on more then 20 vacations together! David does not have NF but he knows what it is like to experience a medical illness and he shared a illness that many people with NF experience. if it is alright with all of you me and David are going to do a joint blog next week on moya moya, our friendship and our trip! what do you say? leave your comments below, if you would rather us keep it to strictly NF people just let us know. looking forward to tell you all about moya moya !
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