A blog run by Logan, Allison, Dylan, Jake, and Connor. We all have Neurofibromatosis (NF) type 1. On this blog we will share our personal stories then update you on whats going on with us. We will also have guest that have NF1 and NF2 (diffrent people), such as friends, parents, ect. We hope you enjoy our blog.
so awesome you guys are doing this!...wish i would of had friends with NF in common, as it would of made growing up with NF a whole lot easier! (i was diagnosed at age 2 and am 47 now).anyways, keep up the great work!...i might add that im sooooo lucky to have so many great NF friends now tho! :)
Hey there! I am so glad I found this. My name is Jorie. I am a senior in college and I have NF 1 as well. It is amazing to hear all your stories and to just know that I am not alone. (:
so awesome you guys are doing this!...wish i would of had friends with NF in common, as it would of made growing up with NF a whole lot easier! (i was diagnosed at age 2 and am 47 now).anyways, keep up the great work!...i might add that im sooooo lucky to have so many great NF friends now tho! :)
ReplyDeleteHey there! I am so glad I found this. My name is Jorie. I am a senior in college and I have NF 1 as well. It is amazing to hear all your stories and to just know that I am not alone. (:
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