A blog run by Logan, Allison, Dylan, Jake, and Connor. We all have Neurofibromatosis (NF) type 1. On this blog we will share our personal stories then update you on whats going on with us. We will also have guest that have NF1 and NF2 (diffrent people), such as friends, parents, ect. We hope you enjoy our blog.
Dylan
Hi my name is Dylan. Most people see me as a regular teenager but what they don't see is the fact that i am living with Neurofibromatosis type 1. It is one of the most common yes most unknown medical disorder. 1 in 3000 people get it and i am that one. i was diagnosed at 6 months of age. at the time i knew nothing of it because i was a baby. now that i am 16 i understand it greatly. i am affected by it in some cases. i sometimes have trouble reading at higher levels and i can have trouble understanding what i read.
However, i never let the fact that i have NF get in the way of any of my goal in life. Instead I see it as more motivation to achieve them because I can then set an example that it doesn't matter who you are or what you have, with enough hard work you can achieve your goals. I believe that i have NF and it does not have me. What I am trying to say by this is that NF makes me who I am. It is a part of me and it always will be. That is all for now. hope to talk to you more soon..
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