Wanna learn more about us?

 Check out each of our pages on the blog to know more about each one of us, hear our stories, learn about the amazing camp we are apart of. We are an amazing community of people who are ready to do one thing. Spread the word!

This is our start to something big.

        Our Mission.

• To spread the word about childhood/teen/young adult neurofibromatosis 
• To empower kids who struggle with with neurofibromatosis
• To tell people about neurofibromatosis who know nothing about it
• To raise money to send kids to camp
• To raise money to build a permanent camp   

How we got started.

We all met at camp. A camp for children/teeens with NF  And as the years went by we all realized something...their is not much awareness for NF or even NF research, and it bugs is all big time, because it's so common. One and every 3,000 people have some type of NF. Think of those odds. So It all started one day on twitter. A small group of friends from a camp for kids with NF started tweeting different celebrities asking them to re-tweet us, trying to get the word out. A few celebrities such as Andrew Zimmerman, Howie Mandwel, Leann Rimes and more. The feed back we were getting was good. But then One of us came up with a great idea to start a blog! Start a Youtube, to spread the word about this very common illness.

We are Five Kids named, Logan, Allison, Jake, Connor and Dylan and we are on this amazing journey to spread the word about NF. Hope to talk to you all very soon.